NNOS Foundation is a registered not-for-profit Trust, started in January 2005, under the name National Network for Organ Sharing, with the objective of promoting organ transplantation in India.
It aims to improve the quality of human life by maximizing the availability and reach of deceased donor organs to those who badly need them because of organ failure, as well as preventing organ failure among the population.
The Centre for NCD Prevention of NNOS is currently involved in a Pilot Project to prevent renal damage among the rural population, so that the expensive alternative of organ transplantation is avoided. NNOS is taking steps towards implementing cost-effective Non Communicable Disease prevention strategies.
Former Indian Administrative Service Officer and former Secretary, Asian Development Bank
Industrial Consultant and former Managing Director, ITCOT Ltd
A lawyer by profession and a member of the Bar Council of the Madras High Court
A practicing Chartered Accountant
NNOS worked to motivate the State Government to get involved in establishing a workable regulatory framework for organ sharing and thereafter assisted in establishing and running the program. Currently, NNOS staff are involved in running the program and improving it. NNOS is also working closely with some hospitals to fill the gaps in soft infrastructure, so they can actively participate in increasing the availability of organs.
NNOS realized that organ transplantation helped save the lives of a certain section of the population, but was out of reach for the vast majority because of the cost involved. Organ failure prevention as much as possible is the only way forward for them. So, NNOS looked to start a program to control Non Communicable Diseases in rural areas, including kidney failure. It studied a working model on that established by a leading Nephrologist, Dr M K Mani (Kidney Help Trust), through universal screening and treatment for Diabetes and Hypertension, which seemed to prevent 60% kidney failures, 70% heart attacks and 80% strokes. With some changes to that model and with support from Kidney Help Trust and from the WHO funded TN Health Systems Project, NNOS started a Project to establish the costs and scalability of a Public Private Partnership in this area. The Project was rolled out in Lathur Block, Kancheepuram District, TN, with funding from the Willingdon Corporate Foundation.
During the last three years, door-to-door demographic data on 28000 residents collected, BP measured of 23100 accessible persons of age 10 and above, urine sugar measured of 24500 accessible persons of age 5 and above. Of them, those identified and confirmed after repeat tests as being diabetic are 1800 and hypertensive are 2000, with 400 of them being both. Thus 3400 persons need treatment. Of them, 700 preferring to have their own treatment; remaining 2700 being our target group. Thus 2500 persons are in need of the treatment (1300 for diabetes and 1500 for hypertension,300 both). Among those above the age of 10, prevalence of hypertension and diabetes were seen to be of the order of 15%, and 8%, respectively, with four out of five of them unaware of their condition. Lack of adequate infrastructure at the Primary Health Centre level makes this difficult and hence the next stage of the project envisages some solutions for this.
In addition to this, a small sized parallel project is being run in that project area to study the effectiveness of using mobile phone technology to nudge persons to adopt dietary and lifestyle changes needed to complement the effect of medication.